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Amelia official logo Amelia Lee - Tetralogy of Fallot

Medical History Medical bracelet Before discovery Pre-surgery briefing Surgery Day 2006 1st Operation @ GOSH 2nd Pre-surgery @ GOSH 2nd Operation @ GOSH Heart Assessment @ GOSH News about Amelia I love reading books Amelia doing sports Shaolin Kung Fu Open water swim Rock climbing Fun playing scooter Playing on the beach Ice skating Playing with snow Painting experience Fruits picking Found Little Brown Bat Amelia Gardening Climb Mount Kinabalu Last hug to my long hair Donate

In Open Hearts Kate Bull, formerly a cardiologist at Great Ormond Street Hospital, tells not just of the development of heart surgery in children, but of the patients, past and present, whose lives have been transformed.

Great Ormond Street Hospital Charity featured Amelia's story in their Valentine Day 2011 fundraising project.

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Heart_Assessment @ GOSH


Amelia recently complaint that she felt like a bubble pop inside her heart and it was extremely painful for split seconds then she was fine. Mummy made contact with GOSH about this new symptom on 06 June 2014.

Before 06.06.2014 -> 3 - 4 times on different days
06.06.2014 once
07.06.2014 twice
08.06.2014 once
11.06.2014 Once
27.06.2014 Once
19.11.2014 Once
29.11.2014 Once
10.12.2014 Once
29.01.2015 3 times

GOSH booked Amelia for the following procedures on 06 August 2014.

  • Exercise test
  • MRI Scan
  • Echo
  • 24 hours ECG

The procedures were scheduled back to back and all to be completed within one day. The first procedure starts at 9am and the hospital staff advised to be there around 8am.

Exercise test

Amelia was asked to paddle an exercise bike till she cannot paddle any more to analyse heart performance. Amelia's heart shows three continuous irregular heartbeat pattern. The test was stopped there as it was not advisable to continue without cardiologist supervision.


MRI Scan

Amelia was sent to MRI department after the exercise test. The MRI scan was performed without anaesthetic. The MRI machine was modified to cater for children. Amelia can watch a kids movie while inside the scan tunnel to keep her entertained. Amelia has to listen to the Cardiologists instructions while the scanning in progress like take a deep breathe, hold it and breathe out slowly etc. The instructions will overwrite the movie in progress. The whole process was relatively relax and easy for Amelia.



After the MRI scan, Amelia was sent to have an Echo procedure. The staff scanned Amelia's heart using a stick to move around her chest and took couple of echo diagrams and pictures of her heart.

24 Hours ECG

This was the quick fix of a portable ECG machine on Amelia with 5 electrodes stickers on her body. Amelia can remove the stickers and ECG machine after 24 hours and sent the gadget back to the hospital.



Amelia complaint of similar pain in the chest but slightly severe on 19.11.2014. This time she felt like a knife stabbed in her heart when she breathe in and she was screaming for mummy for help at 5am. She was scared to breathe because of the extreme pain and she felt her head was heavy. The symptom comes and goes. Contact the GOSH and GP on the same day. The GP suggested Amelia to describe her chest pain experience to the Cardiologist as she described it to him in the next heart review next Monday. Amelia is articulate and fluent in English.

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Amelia's documentary

(YouTube Videos)

Amelia's favourite books

Amelia loves reading. click on the book cover to see her books collection.

Thank you for your generosity and support with the charities that work hard to help babies born with congenital heart defects.

Total Donations raised for the charities that help babies born with congenital heart defects by Amelia and her parent so far is £2,039.92:

  • Great Ormond Street Hospital for Children Charity
  • The Sick Children Trust
  • Make A Wish Foundation

By participating in the following activities:

  • SwissAlpine Kids Run 1.4km 2015 by Amelia herself
  • Henley On Thames Kids Triathlon by Amelia herself 2014
  • Westminster Mile Run by Amelia herself 2014
  • Fun Triathlon by Amelia herself 2013
  • 2010 Bupa London 10000.
  • British Heart Foundation Hyde Park Jogs 2010
  • 2011 Adidas Women's 5k Challenge at Hyde Park London.
  • Climb Mount Kinabalu expedition on 1 December 2011.
  • Bupa London 10K 2012