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Amelia official logo Amelia Lee - Tetralogy of Fallot

Medical History Medical bracelet Before discovery Pre-surgery briefing Surgery Day 2006 1st Operation @ GOSH 2nd Pre-surgery @ GOSH 2nd Operation @ GOSH Heart Assessment @ GOSH News about Amelia Amelia doing sports Shaolin Kung Fu Open water swim Rock climbing Fun playing scooter Playing on the beach Ice skating Playing with snow Painting experience Fruits picking Found Little Brown Bat Amelia Gardening Climb Mount Kinabalu Donate

Great Ormond Street Hospital Charity featured Amelia's story in their Valentine Day 2011 fundraising project.

 
Latest Cardiology News : Ways to stop an A-fib episode      Causes and remedies for low blood pressure during pregnancy      How a single bout of exercise instantly protects the heart      Eating cheese every day may help to protect heart health      Acute kidney injury linked with heart failure      

Welcome to Amelia Lee website - The girl with Fallot Heart

 

This website is created to share experiences with families, friends and parents having children with similar heart condition as Amelia who was born with a congenital heart defect (CHD) called Tetralogy of Fallot (often abbreviated to TOF), her physical development, symptoms, on-going medicals treatments and so on.

Amelia is now 11 years old and she goes to school; play with other kids and learn new things every day. Amelia likes sports and she understands she will have to stop doing what she is doing if she feels chest pain or out of breathe or dizzy. She also developed keen interest to seek in depth knowledge in her medical treatments and equipment used in her treatments. She has her own cardiology stethoscope, she used it to listen to her own heart rhythm and she compares her heart rhythm with a normal person's heart. Amelia has irregular heartbeat, the Electrophysiology key hole surgery performed in October 2015 has brought it down to 1%.

Amelia was born in December 2005 at one of the hospitals in North London in the United Kingdom (UK). Her heart problem was not detected until she was 6 weeks old. The doctor said she has a loud systolic murmur. Since then Amelia’s heart condition was being monitored the Great Ormond Street Hospital (GOSH), the Children Hospital located in Central London, UK.

Amelia was baby number 1271 getting heart treatments from Great Ormond Street Hospital according to GOSH records.

Amelia started showing signs of bluish-purple skin from crying and feeding from three months old onwards and the frequency of the blue baby symptoms which made her vomit increases to the point she had difficulty to keep food down her stomach and She had had her first heart surgery when she was 6 months old, on 23 May 2006 at Great Ormond Street Hospital (GOSH). She was kept at GOSH after her heart surgery for two weeks.

The trickiest task to do before Amelia’s open heart surgery was that of to make sure she puts on as much weight as possible and it was very interesting to hear from other parents of different methods they used to help their babies to gain weight. Some parents gave blended solid food and other parents gave cheesy food. Amelia was unable to take solid food even in liquidised form she turned blue and vomit (like a fountain) before she could finish her food. Doctor said eating and drinking for Amelia was like running a marathon each time. She sweats a lot during feeding. Amelia then only drank formula milk every 2 hours throughout the day every day till her first open heart surgery. Amelia was able to eat solid food after her surgery.

Amelia has had her second open heart surgery in June 2009 to remove the pulmonary obstruction in her heart. She felt tired easily before her second surgery.

The information on this website is compiled by Amelia's mother and is updated frequently. We hope that this website has provided hope to parents that having a child with similar heart defects as Amelia.

We welcome parents to contact us for further information about Amelia's development.

The use of the information on this website for research or commercial reason without permission is prohibited.

Latest News
Cardiovascular / Cardiology News From Medical News Today
Ways to stop an A-fib episode Wed, 13 Dec 2017 00:00:00 PST
A look at how to stop an atrial fibrillation (A-fib) episode. Included is detail on the best ways to prevent an episode and when you should see a doctor.

Causes and remedies for low blood pressure during pregnancy Tue, 12 Dec 2017 06:00:00 PST
Low blood pressure, or hypotension, during pregnancy does not usually cause major health issues, and can be treated with at-home care. Learn more.

How a single bout of exercise instantly protects the heart Sun, 10 Dec 2017 00:00:00 PST
The phenomenon of 'ischemic preconditioning' helps to explain how an acute bout of exercise can have immediate protective effects against heart disease.

Eating cheese every day may help to protect heart health Mon, 04 Dec 2017 09:00:00 PST
Eating 40 grams of cheese every day could help to reduce the risk of heart disease and stroke, suggests a new observational study.

Acute kidney injury linked with heart failure Fri, 01 Dec 2017 02:00:00 PST
Acute kidney injury is a growing problem in the United States. According to the latest study, it may also increase the risk of heart failure.

 
 
 
 

Thank you for your generosity and support with the charities that work hard to help babies born with heart defects.

donate to charity


Contributions made by Amelia, her parents together with the sponsor:

Total Donations raised for charities £2,039.92

For Great Ormond Street Hospital for Children Charity and The Sick Children Trust by participating in the following activities:

  • SwissAlpine Kids Run 1.4km 2015 by Amelia
  • Henley On Thames Kids Triathlon by Amelia herself 2014
  • Westminster Mile Run by Amelia herself 2014
  • Fun Triathlon by Amelia herself 2013
  • 2010 Bupa London 10000.
  • British Heart Foundation Hyde Park Jogs 2010
  • 2011 Adidas Women's 5k Challenge at Hyde Park London.
  • Climb Mount Kinabalu expedition on 1 December 2011.
  • Bupa London 10K 2012

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