This website is created to share experiences with families and friends about a little girl named Amelia Lee who was born with a congenital heart defects called Tetralogy of Fallot, her physical development, symptoms, on-going medicals attentions and so on.

Amelia Lee is now 5 years old and she goes to school; play with other kids and learning new things every day.

Amelia was born on 06 December 2005 at one of the hospitals in North London in the United Kingdom. Her heart problem was not detected until she was 6 weeks old. The doctor said she has a loud systolic murmur. Since then Amelia’s heart condition was being monitored by a local Hospital in North London and also Great Ormond Street (GOSH), the Children Hospital in Central London, UK.

Amelia started showing signs of bluish-purple skin from crying and feeding from three months old onwards and the frequency of the blue baby symptoms which made her sick increases to the point she had difficulty to keep food down her stomach and She had had her first heart surgery when she was 6 months old, on 23 May 2006 at Great Ormond Street Hospital (GOSH). She stayed for two weeks at GOSH after the surgery.

The trickiest task for mummy and daddy before Amelia’s surgery was that of to make sure she puts on as much weight possible and it was very interesting to hear from other parents of different methods they used to help their babies to gain weight.

After the surgery, the  Children Hospital in London, GOSH continues to monitor her heart development and she still has pulmonary obstruction in her heart which was removed surgically in June 2009.

The information on this website is compiled by the parents of Amelia Lee and is updated frequently. We hope that this website has provided hope to parents that having a child with similar heart problems as Amelia.

Amelia's parents welcomed parents to contact them for further information about Amelia's development.

The use of the information on this website for research or commercial reason is prohibited.