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Amelia official logo Amelia Lee - Tetralogy of Fallot

Medical History Medical bracelet Before discovery Pre-surgery briefing Surgery Day 2006 1st Operation @ GOSH 2nd Pre-surgery @ GOSH 2nd Operation @ GOSH Heart Assessment @ GOSH News about Amelia Amelia doing sports Shaolin Kung Fu Open water swim Rock climbing Fun playing scooter Playing on the beach Ice skating Playing with snow Painting experience Fruits picking Found Little Brown Bat Amelia Gardening Climb Mount Kinabalu Last hug to my long hair Donate

Great Ormond Street Hospital Charity featured Amelia's story in their Valentine Day 2011 fundraising project.

Latest Cardiology News : Ways to stop heart palpitations      How long can a person live with congestive heart failure?      Nut lovers rejoice: Your favorite snack protects your heart      What are the signs of heart attack in a woman?      How music helps the heart find its beat      

Welcome to Amelia with Fallot Heart website - Child born with congenital heart defects


This website is created to share experiences with families, friends and parents having children with similar heart condition as Amelia who was born with a congenital heart defect (CHD) called Tetralogy of Fallot (often abbreviated to TOF), her physical development, symptoms, on-going medicals treatments and so on.

Amelia is now 11 years old and she goes to school; play with other kids and learn new things every day. Amelia likes sports and she understands she will have to stop doing what she is doing if she feels chest pain or out of breathe or dizzy. She also developed keen interest to seek in depth knowledge in her medical treatments and equipment used in her treatments. She has her own cardiology stethoscope, she used it to listen to her own heart rhythm and she compares her heart rhythm with a normal person's heart. Amelia has irregular heartbeat, the Electrophysiology key hole surgery performed in October 2015 has brought it down to 1%.

Amelia was born in December 2005 at one of the hospitals in North London in the United Kingdom (UK). Her heart problem was not detected until she was 6 weeks old. The doctor said she has a loud systolic murmur. Since then Amelia’s heart condition was being monitored the Great Ormond Street Hospital (GOSH), the Children Hospital located in Central London, UK.

Amelia was baby number 1271 getting heart treatments from Great Ormond Street Hospital according to GOSH records.

Amelia started showing signs of bluish-purple skin from crying and feeding from three months old onwards and the frequency of the blue baby symptoms which made her vomit increases to the point she had difficulty to keep food down her stomach and She had had her first heart surgery when she was 6 months old, on 23 May 2006 at Great Ormond Street Hospital (GOSH). She was kept at GOSH after her heart surgery for two weeks.

The trickiest task to do before Amelia’s open heart surgery was that of to make sure she puts on as much weight as possible and it was very interesting to hear from other parents of different methods they used to help their babies to gain weight. Some parents gave blended solid food and other parents gave cheesy food. Amelia was unable to take solid food even in liquidised form she turned blue and vomit (like a fountain) before she could finish her food. Doctor said eating and drinking for Amelia was like running a marathon each time. She sweats a lot during feeding. Amelia then only drank formula milk every 2 hours throughout the day every day till her first open heart surgery. Amelia was able to eat solid food after her surgery.

Amelia has had her second open heart surgery in June 2009 to remove the pulmonary obstruction in her heart. She felt tired easily before her second surgery.

The information on this website is compiled by Amelia's mother and is updated frequently. We hope that this website has provided hope to parents that having a child with similar heart defects as Amelia.

We welcome parents to contact us for further information about Amelia's development.

The use of the information on this website for research or commercial reason without permission is prohibited.

Latest News
Cardiovascular / Cardiology News From Medical News Today
Ways to stop heart palpitations Thu, 19 Apr 2018 00:00:00 PDT
Heart palpitations can feel like a fluttering in the chest, a pounding heart, or a racing pulse. Smoking, exercise, and stress can cause them, but if palpitations are the result of an underlying condition, treatment will be necessary. Here, learn how to stop heart palpitations at home and when to see a doctor.

How long can a person live with congestive heart failure? Wed, 18 Apr 2018 12:00:00 PDT
Congestive heart failure is a progressive disease that causes the heart to weaken, making it difficult to pump blood around the body. In this article, we look at the symptoms, stages, and life expectancy of congestive heart failure. We also look at treatment options, including lifestyle changes and surgery.

Nut lovers rejoice: Your favorite snack protects your heart Wed, 18 Apr 2018 00:00:00 PDT
Nuts are widely considered beneficial to the heart. A new study dives deeper into the specifics and finds out exactly what nuts can do for our tickers.

What are the signs of heart attack in a woman? Tue, 17 Apr 2018 12:00:00 PDT
Symptoms of a heart attack can often vary between males and females. Being able to spot the early signs means that prompt treatment can be sought. There are also risk factors, such as lifestyle choices, that can be avoided, although some, such as age, genetics, or medical history, may not be avoidable. Learn more here.

How music helps the heart find its beat Tue, 17 Apr 2018 09:00:00 PDT
A new study shows that listening to music can intensify the beneficial effects of hypertension medication in people with high blood pressure.


Amelia's documentary

(YouTube Videos)

Thank you for your generosity and support with the charities that work hard to help babies born with congenital heart defects.

donate to charity

Total Donations raised for charities £2,039.92

  • Great Ormond Street Hospital for Children Charity
  • The Sick Children Trust
  • Make A Wish Foundation

By Amelia and her parents by participating in the following activities:

  • SwissAlpine Kids Run 1.4km 2015 by Amelia
  • Henley On Thames Kids Triathlon by Amelia herself 2014
  • Westminster Mile Run by Amelia herself 2014
  • Fun Triathlon by Amelia herself 2013
  • 2010 Bupa London 10000.
  • British Heart Foundation Hyde Park Jogs 2010
  • 2011 Adidas Women's 5k Challenge at Hyde Park London.
  • Climb Mount Kinabalu expedition on 1 December 2011.
  • Bupa London 10K 2012